DISABLED people are currently engaged in the fight of our lives as we approach the second reading of the Terminally Ill Adults (End of Life) Bill on Friday November 29.
 
We are exhausted, burned out and triggered. Every day for the past couple of months since Kim Leadbeater won the MPs’ private member’s Bill ballot at the start of October, we have been relentlessly researching, writing and discussing assisted suicides and euthanasia of disabled people.
 
We have been collating evidence from jurisdictions around the world where it is currently legal and imagining what those laws would look like here in Britain.
 
It’s a subject which is all too real for us.
 
Something that characterises the lives of disabled people is illness, pain and early death. Within the disabled people’s movement, something you never get used to is losing so many friends and fellow activists far too soon.

Not because of the impairments or health conditions with which we live. But too often, due to preventable illness, medical neglect, inadequate support or the stress of repeated, hostile assessments.
 
Researching other jurisdictions brings us face to face with human rights abuses and wasted lives, with disablist attitudes and with assisted suicide as a default solution for inadequate public services and relief of poverty.
 
The legalisation of assisted suicide is something the disabled people’s movement in Britain has always fought against. No organisation run by and for deaf and disabled people in Britain has ever been in favour.
 
But we have never been in as much danger as we are with this Bill of the law being changed.
 
Historically, votes on this subject have always been a matter of free choice for parliamentarians, allowing them to vote with their conscience.

Technically, the vote on Friday is still a free choice. But one questions how free Labour MPs really feel when the Prime Minister’s position on the question has been so overt.
 
Newly elected, Keir Starmer pledged celebrity mate Esther Rantzen that the law would change.
 
Starmer’s support for legalisation was clear from before he was ever leader of the Labour Party. As Director of Public Prosecutions, he introduced guidance making it clear that a relative or friend who helps a loved one to die from compassionate motives is unlikely to be prosecuted.
 
Disabled people always knew we would be facing a strong attempt at legalisation with Starmer as PM, but we never imagined it would come in so quickly and with such speed.
 
The passage of legislation introduced by Parliament rather than by the government evades the same level of scrutiny. There is less time for debate.

There is also no requirement for a statement of compatibility with human rights or need to evidence consideration of equality impact. Equality Act duties to provide reasonable adjustments so that disabled people can have a say also do not apply.
 
Disabled people do need longer timeframes for engagement due to the multiple barriers we face. Increasingly, our lives are consumed with just surviving.

So, it has been a huge effort for us to mobilise a response to the Leadbeater Bill within enough time to make any sort of difference. And we are rightfully proud of how much disabled activists have managed.
 
Yet again and again, we are hearing from MPs that the Bill does not affect disabled people. This is simply not true, and we have produced a number of information sheets giving example after example of why and how it does.
 
We have also been repeatedly told that the Bill will not be amendable. So our fears of a slippery slope and expansion of the Bill to cover not just those who are terminally ill but also those who are physically disabled and people living with mental distress are unfounded. We have been accused of scaremongering.
 
This is despite assertions from numerous human rights lawyers that legally, yes, the qualifying criteria set out in the Bill could be expanded following a ruling from the European Court of Human Rights.
 
In fact, you just need to read section 10 of the Human Rights Act 1998, and it is there in black and white.
 
But what is most worrying is that MPs simply haven’t had the time to get to grips with the complexity of legislation that would change healthcare as we know it in Britain.
 
They have been deluged with information, meetings and events on the topic on top of their day-to-day parliamentary work and their constituency work. Many are hoping that there will be more time for scrutiny at the next stages of the Bill.
 
But if that Bill passes its second reading on Friday, Parliament will have then voted in favour of the principle of legalisation.

Once that is done, that is a step that cannot be undone. It will make legalisation an even more inevitable future for us.
 
We will be doing everything we can to try to influence MPs to see that this Bill falls right up until that vote at 2.30pm on Friday  —  by email, on social media and standing outside Parliament during the debate. Please join us.
 
Ellen Clifford is an activist with Disabled People Against Cuts (dpac.uk.net).